Don't count me out yet!

I do realize that I am in the care of Hospice now.  I am not asking for any kind of special treatment.  I know miracles happen and with God anything is possible.  I also know there are lots of people praying for a miracle and much more deserving of a miracle than I am.  Families enduring more awful experiences than I am.  I am trying not to have unrealistic expectations but as I have said before....I have just always lived on the sunny side of life.
My issue as of late is a bed sore.  Yuck!  I also have issues getting sick to my stomach.  With persistence, both of these issues are going away, but they sure do slow me down.  The bed sore is very sore and has kept me in bed, laying on my side most of the time.  Dad and I spend lots of time trying to figure out how to get rid of the stomach issues.  With the help of the nurses, we have tried to figure out why I toss cookies when I go somewhere in the car and the motion comes to a stop.  Depending on the day or time or time of day, you could stop by the house and see me looking really good or really not.  I just never really know.

I am getting used to the culture of Hospice.  Our local Hospice helped my mom in her last few weeks of life and we had a wonderful experience.  Once again they are being very helpful.  I am very happy with their care and they give my dad some relief and reassurance.  He is a very good caregiver.  One day, while discussing my care, a nurse asked my dad if I wanted to continue treating the bed sore or not. To be honest, I had wondered myself if this was the end.  But had decided that, after almost 9 years of fighting, I didn't want this bed sore to be the end of my battle. 

A few days ago we had an incident that made Trent very emotional.  He laid in the bed with me and just cried his little heart out.  As I lay there with my arms around him, all I could think of was how much he still needs me here.  Not having Brad is very hard on him and the thought of losing his me scares him very much.  He needs his mom and he needs me to continue sharing stories about his dad.  Lots of stories.

So I have increased my protien and caloric intake to help my body get stronger.  I have started using my walker to walk in the house to work my muscles.  I've gotten up and taken little rides in the car and tried to change positions more often in the bed.  Wednesday night I achieved my first goal.  I went to a Mass of healing at St. Leo church.  It was a great Mass and I felt so refreshed when we left!  I would like to thank all my family who attended and would like that I pray for all the people who are praying for their own healing. 

Trent sat beside me during Mass. Sometimes he would hold my hand and that reminded me why I am going to keep working.  Even if it is just for one more day!

Thanks to everyone for your support, your visits, food, help around the house,

Don't count me out yet....I still have some more memories to make!